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  • Narcolepsy Suffers Still Waiting for Government Support Almost One Year On
23/05/2025
John Lynch
Wednesday, 20 February 2013 / Published in Medical Negligence

Narcolepsy Suffers Still Waiting for Government Support Almost One Year On

Last year we blogged about a swine flu vaccine called Pandemrix which was suspected of causing narcolepsy.  In yesterday’s article “Parents slam inaction after narcolepsy support pledge” the Irish Examiner highlights that children who developed narcolepsy after receiving the swine flu vaccine have yet to be offered a comprehensive package of supports almost a year after a Government pledge.  The Finnish government, in comparison, have set aside €30m to pay for medical care, travel costs for treatment, and other expenses.  Last year Courts in Sweden awarded compensation to children who developed this disorder.

Narcolepsy is a brain disease in which sufferers have daytime sleepiness, broken sleep at night and a condition called cataplexy, which is a sudden loss of muscle tone and strength. Additional symptoms include automatic behaviour (patients carry out certain actions without conscious awareness). All of the symptoms of narcolepsy may be present in various combinations and degrees of severity.

Narcolepsy usually begins in teenagers or young adults and affects both sexes equally. The first symptom to appear is excessive daytime sleepiness, which may remain unrecognized for a long time in that it develops gradually over time. The other symptoms can follow excessive daytime sleepiness by months or years.

The lobby group Sound (Sufferers of Unique Narcolepsy Disorder) is seeking financial support for its 47 members, 38 of whom are under 18, if they are unable to work and also clarity about what allowances those affected are entitled to, and want parents whose ability to work is compromised, due to their children’s condition, to have some form of assistance.


For further advice or if you wish to discuss any other legal area please contact reception@lynchsolicitors.ie or telephone 052-6124344.

The material contained in this blog is provided for general information purposes only and does not amount to legal or other professional advice. While every care has been taken in the preparation of the information, we advise you to seek specific advice from us about any legal decision or course of action.

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